An Open Letter: We Deserve Better
Disclaimer: Please note, nothing in this post is meant to be medical or financial advice, All information provided is for general information only and does not constitute any professional advice. We assume no liability or responsibility for implementation of information contained on this blog. Please talk to a professional. <3
And there it was. Written in black and white. It shouldn’t have to validate the years of pain I’ve suffered but it confirms what I’ve known for years.
Something was wrong.
After years of research, I found a ✨community of women ✨who’ve suffered the same. They showed me their journey and how they fought for care. I discovered women everywhere were suffering because society refused to take care of them. Refused to believe them. Refused.
This timelapse in care will cost me my organs, thousands of dollars, and weeks of recovery - for now & at least. To talk about the emotional burden this fight has caused would be useless because I have no discernable thoughts. Only disbelief in the system society deemed ACCEPTABLE. There’s no cure, very little research, and no understanding of this brutal condition can do. There’s a lingering of uncertainty and I wonder what else it will take.
Endometriosis.
Devasting.
Unbearable.
Terrifying.
Some days I wished for cancer because not knowing became too much. Maybe SOMEONE would listen if the labs came back different OR if I was hospitalized more. Guilt would find me. Who wishes for something so horrible? As it turns out, many of us do.
Not once did a doctor suggest endometriosis. The only reason I suspected endometriosis is because of my online community. They made their experience accessible. Women continue to lose their organs, their quality of life, and so much more.
✨This is why I’m sharing my story. ✨
We shouldn’t suffer alone with no answers. No research. No solutions. No support.
Without this found community, I wouldn’t have been able to advocate for myself effectively. Their knowledge helped me ask the right questions. They offered me their lessons. I learned I was not alone in this fight. We carried each other.
✨They are my guiding lights.✨
Being chronically ill is a full-time job and very isolating. We spend hours working on paperwork, booking appointments, and research. Right now, all I can do is share my story and hope that someone feels seen.
✨Understood. Capable. Strong. ✨
I want to carry the torch and light a path for the other women who follow in our footsteps. We, as a collective, can give women, a place to grieve, a place to heal, a place to feel at peace.
With all my love <3 Chris
PSA, bestie <3
This post may have affiliate links, which means I could earn a lil’ cash money if you decide to snag something I mention (at no extra cost to you, of course!). It helps keep this blog running and my caffeine options fully stocked!! ☕️✨ I only link stuff I genuinely love and would 1000% drop in the group chat.
🖤 You’re officially in my Top 8 if you read this far. 🖤
Like, for realzzzs I <3 you. Thanks for being here and supporting my small business!!! Your support means more than you know - whether you shared this post, clicked a link, or giggled at a joke, I’m glad you stopped by! I hope you’ll join me on your next coffee break. <3
<3 <3 <3
HELLLOOOO! Hey! HI! How are ya? I’m Chris! Your friendly neighborhood millennial, neurodivergent, and chronically ill girlie trying to manage life & all its super-duper exciting twists and turns. I hope you enjoy reading & learning with me!.